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Engaging People with Lived Experience in Research on Dementia

This event will consist of a workshop and facilitated dialogue with community members who have lived experiences with dementia (persons with dementia and care partners) 

Trainees will receive training from the Alzheimer Society of Ontario, local dementia researchers, and people with lived experience in dementia and research. Talks and activities will focus on: (1) stigma, (2) the benefits, opportunities, and challenges of patient engagement in dementia research, (3) dementia-inclusive research activities, and (4) honouring the personhood and rights of persons with dementia in research.

Following these talks and activities, trainees will break into small groups with community partners who have lived experience with dementia. Trainees will have the opportunity to participate in a facilitated dialogue about the research experience for persons with dementia and care partners. This session will be facilitated by local dementia researchers. 

At the end of the workshop, you will be able to:

  1.  Communicate effectively and respectfully with people living with dementia.
  2. Define ‘patient-engagement’ and ‘patient-oriented research.’
  3. Describe different strategies and levels of engagement, and begin to formulate engagement strategies appropriate for your own research.
  4. Describe the value of engaging people with lived experience in research processes.