Abstract

Decline in functional ability is a core feature of all types of dementia. Changes in brain function inevitably lead to greater disability as dementia progresses. Understanding how to best support a person in continuing to be engaged with activities for as long as possible is key to the development of interventions to support family members and paid caregivers. Maintenance of independence is a core wish of most people living with dementia. Great focus has been given to cognitive stimulation therapy and other interventions targeting symptoms in dementia. In this talk we will examine various factors underpinning disability in dementia, and how family/caregiver-related factors may be key in supporting activity engagement.

Biography

Eneida trained as an occupational therapist (BSc and MSc in Occupational Therapy) at the University of Sao Paulo, Brazil. After some years in clinical practice, she moved to the United Kingdom, where she completed her PhD in Applied Cognitive Psychology at the University of Cambridge. Her thesis focused on disability in frontotemporal dementia (FTD), and the impact of FTD on family members. Eneida then relocated to Australia, where she expanded her research into Amyotrophic Lateral Sclerosis (ALS). She is now back in the UK and has recently set up a research consulting company.

Eneida’s research program investigates the impact of behavioural and cognitive changes due to neurodegenerative diseases in daily life and care management. She focuses on the development of clinical assessments and non-pharmacological interventions to support those affected by ALS, FTD, and Alzheimer’s Disease. She works closely with health and social care professionals who are in clinical practice. Eneida is particularly interested in ensuring family members are supported and upskilled to manage caregiving responsibilities in daily life.